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      • structure and function
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      • Management of Hearing Loss
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      • Structure and Function
      • Retinitis Pigmentosa (RP)
      • How is Vision Tested in Children?
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      • How is the Vestibular System Tested?
      • Management of the Vestibular System
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      • Talking to your child about their diagnosis
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  • Home
  • About Us
  • What is Usher Syndrome
    • What is Usher Syndrome
    • Genetics of Usher Syndrome
    • Ear >
      • structure and function
      • How is Hearing Tested in Children?
      • Management of Hearing Loss
    • Eye >
      • Structure and Function
      • Retinitis Pigmentosa (RP)
      • How is Vision Tested in Children?
    • Vestibular System >
      • Structure and function
      • How is the Vestibular System Tested?
      • Management of the Vestibular System
    • Tests and professionals involved
  • Research
  • Support
    • Support at diagnosis
    • Support After Diagnosis >
      • Talking to your child about their diagnosis
      • Education
      • Vestibular rehabilitation
      • Play
      • Technology
    • Usher Stories
  • Events
  • Contact Us
  • Donate
UsherKids UK

connect with your community

ushchats - monthly virtual call for parents/carers to connect, 3RD THURS every MONTH starting 21st sept 2023, 20:00-21:00 UK GMT

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Join this informal zoom call which takes place every third Thursday each month (8-9pm UK time) to meet other parents/carers of children and young people at different ages, to share experiences and learn from each other.  Register here to receive monthly invites to these sessions - all welcome. NB. Calls take place Sept - Nov, and Jan - May. No call takes place in December / June / July / August. 
Register here

family INFORMATION day, sat 16th SEPTEMBER 2023, BIRMINGHAM

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USHTHIS uk SUMMER CAMP is BACK - dates for 2024 to be released soon! watch this space....

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USHER COLLABORATION GROUP - ongoing

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USHER KIDS UK JOINS FORCES WITH CUREUSHER TO CREATE THE USHER COLLABORATION GROUP (UCG)
​Purpose: To bring together professional organisations representing and/or serving the Usher syndrome community, to ensure the needs of the community are understood and met 

Membership: Representatives from professional organisations which serve or represent Usher syndrome community who have strategic responsibility for their organisations’ activities. Contact info@usherkidsuk.com for more information

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