In this section we explore SUPPORT AT DIAGNOSIS and also signpost you to other organisations able to support individuals and families affected by Usher syndrome. Check out our upcoming events to build your own network of support within our Usher community, whatever stage in the journey you are at.
In SUPPORT AFTER DIAGNOSIS we provide a wide range of information and resources that might be useful when considering some of the issues raised by an Usher syndrome diagnosis. Don't miss the TIPS from other families on how to get the best from the team supporting your child.
In USHER STORIES individuals and family members affected by Usher syndrome share their experiences and insight.